HI

I just wanted to let everyone know that I am now on a very strong opiate drug called Methadone - yup I am on Meth - lol they have taken me off of my major pain med and are slowly building up the dosage of the meth to hopefully -finally- get rid of some of this pain - but they said to expect to go thru withdrawal of the med they took me off of for 2 weeks - if not more - maybe less - but it will take time to get the meth to a point where it is able to help me

so if I don't respond to anything or respond weirdly please take this into consideration.

I have Finally also recieved a partial diagnosis of entrapped nerve - he thinks there are 3 major nerves effected which is why I am in so much pain and can't walk anymore - but he also thinks there are other more serious issues that he needs to further explore as entrapped nerve does not cause all the pain I have or all the other symptoms




Kaerbaer

Thank goodness for some news about what is actually wrong. Not knowing can be far worse than knowing. The next couple of weeks sound horrendous for you but at least you know there is light at the end of the tunnel.

Kaerbaer,

Sorry to hear of your troubles. Hope you feel better soon.

I hope you get some relief soon.

Still have you on my prayer list! Hang in there!

Lots of good energy sent your way.

How's Kaerbaer doing ? Hope she's doing better these days ?

Hi Everybody

Ok little update - I am finally over the withdrawal from the demerol and duragesic - so the methadone is actually starting to work - I am in less overall pain but my belly pain is still quite sever - and I am finally putting some weight back on which is making my family vry happy - they say I no longer look like death warmed over - all skin and bones and greyish skin tones - lol now I have a more normal skin colour and you can't see all of my bones anymore - although you can still see a lot of them - I ws at the hospital yesterday for a followup and they are very happy and figure that now we can work on getting me stabilized on the meth - which basically means finding the right dose to keep the pain as little as possible - and then they can start to manipulate the entrapped nerves back into place - they tell me this is very painful when it is happening - but once it is back in place the pain should be gone instantly - there are 3 nerves they need to do this with - and then they can start to work on figuring out the rest of the issues as they said I am dealing with 3-4 different problems here and the entrapped nerves just brought the others to light - activated them I guess - but now they have to be dealt with.
I have more energy - finally although it doesn't last long and I can move around a bit better. - so it looks like things are finally going in the right direction and the doctor said this is goin to take a long time - but he is really quite impressed at my progress to date - he said I look happeir and healthier than when he first met me 2 months ago - and they don't ussually see this type of response so earlier - so its good.

they can't do anything about the nausea(sp) or the vomiting or the asthma attacks - but it is that time of year of the astham and allergies so they are to be expected - and as long as I am keeping somethings down they are happy.

So things are really looking up - now if only we could get this all fixed before I run out of insurance I would be thrilled. - at least I a off one of the expensive drugs - although I still have 4 others that are really up there and they are what is draining my insurance - so donations are more than welcome - lol - I am already in debt up to my eyeballs because of all this and once my insurance goes it (which is estimated to be by the end of June if it lasts even that long) will be even worse. so Right now I need all the financial help I can get. -

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themom1955
GPF Moderator

Thanks for everything

Karen

PS - I belong to a number of sites that allow me to enter as many URLs as I want to get hits and visits - mind you some don't allow ptp - but - if any of you have any links you want me to add please feel free to PM me that info as it may help you get refs or a bit of extra income -


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Thank you for the update, Karen. And best wishes!

If you are trying to build a downline, please let me know your programs and referral links. I will select those that I consider as good, and set up a page for you. I do not guarantee any signups, but one never knows...

Cheers,
Papy

Karen,

Sorry to hear of some of your troubles. On the other hand, glad to hear that you've also made some progress in some areas.

Hope you feel better soon ! My thoughts and prayers are with you.

P.S Are you still taking care of the ads ?

I'm doing them and yours is holding until a slot opens up as we currently have 288/288 slots filled

No problem Ron. Just wanted to make sure it wasn't too much of a burden to Karen cause of her troubles. Otherwise, that could wait.

Thanks for the update !

Wowwee some good news from Karen. And I am sure you will be back at work one day. And anything I do is done as a friend but good to know that if anyone is loaning you the money they will get it back even if that is sometime rather than this year or next year.

But really bad news about the insurance running out so soon. Once again, I realise, that despite its many faults we Brits should be grateful for the NHS.

I'm glad to hear that the tide has turned for you and will see what I can do! Will purchase some tickets for the raffles! Wish I could do more!
My hubby went to the hospital yesterday for Kidney stones. They used sound waves to break them up so they would pass easier.

Thank you all for you thoughts prayers and well wishes, - they seem to be working

This is the most supportive site I have ever belonged to and you have no idea how much this all means to me



Karen

OK My next appt is tuesday may 20th - so I will post my next update after that - but things are kinda looking better - the amount of pain I am in is decreasing - and becoming a lot more localized - ok - let me re phrase htat the OVERALL pain is going down - the original pain which sratered all this Is becoming extremely localized and is getting worse - - I will be finding out what that means on tues day - I am hoping that it means that they can fix that pinched nerve soon and then I just have the other 2 nerves to get fixed as well as the other issues that they are still trying to fully diagnose

anyway - I will let you know what they say - and I thank you all for giving my the strength and support to get thru all this
as I have stated before the doctors said I would be dead by know if I didn't fight this as much as I did - and it was this site and you members that gave me that ability

Karen

Karen,

Again, sorry to hear of your troubles. However, glad that you also think that things are kinda looking better. Again, you are in our thoughts and prayers. Best of luck with your next appointment. Hope it helps !

Hope all goes well at your appointment tomorrow! Glad things are going in a better direction for you!

Hi

I just wanted to let you know that I am in a great deal of pain after yesterdays appts so I did the raffles and I am posting a quick update here - but then I will be just resting and trying to recover for however long it takes - I will try to keep an eye on the raffles so don't worry - you WILL get your prizes

ok - I found out yesterday - that a portion of my pain is coming from being on my Borth control method for more than 10 years and it created an extreme lack of estrogen in my system - women will know what I am talking about and you men - trust me - you don't want to know - but I am now on an estrogen replacement to help ease that particular pain -

they have also decided that the way I am reacting to the meth it is NOT an entrapped nerve but more likely a series of pinched nerves throughout my abdomen as a result of the surgery and being bedridden for over 2 years - they are going to give me another month to get stabilized on the meth - then they are going to start a series of shots into my abdomen - of what I don't know but they said it was like botox and would paralyze the areas and allow the nerves to heal and after a series of those shots - they will re-evaluate and we will go from there.

that's all for now - now I need to rest to hope this pain eases before it drives me insane

thanks for all your support and caring through all of this

I am deeply grateful and love all of you for it



kaerbaer

Just to make you jealuous, Karen. I had an op to remove one ovary and the womb. They were worried about what they would find so instead of the usual cut that would be hidden by a bikini they did a far bigger one from the navel down as far as they could go. Two years later because a gland was playing up they opened me up in exactly the same place and removed the 2nd ovary. Nurses kept telling me I must be so careful as it was too soon to reopen the wound really. Sent to another hospital for a fortnight to convalesce, an almost unheard of thing. But got out of there after 3 days with a promise to be good.

And I haven't had a moments problem since apart from the fact I still have a bit of glandular problems which the Doctors refuse to believe. But apart from putting on weight I am fine. I have managed to stabilse the weight gain but can't shift the flab and have to be careful about what I eat. And I have a scar of course and my tummy muscles are next too being useless after twice being slashed open.

And you get so much pain due to an op, Karen.

Once again I thank God for getting through my 2 ops so well. But I needed something to go right. 6 weeks before the first operation I buried my Dad whom I had nursed for some years. And between the ops I was burgled 6 times and lost of many things of monetary and sentimental value. But according to the police I was a neurotic woman who had only been burgled once and was then pretending to be burgled. The first time they said "Don't know how he got in, are you sure you didn't leave the door unlocked?" I showed them where he had forced the window open but they didn't believe me.

You can see why I have no faith on our wonderful policemen can't you.

But I met and married a wonderful man. We have been a item for 25 years this summer. I just hope your story has a happy ending as well, Karen.

Hi

You just hang in there, with a little faith you'll get through all your troubles.


TweetyBird71

glad you are doing better. wish i could do more to be supportive, but ive just been diagnosed with lung cancer, and its taking just about all i have just to keep my head on straight these days.

take care of yourself!
deb

I am so sorry - I feel very much for you - I have had a lot of relatives with all different kinds of cancer - including both of my parents - and I know you are in for the fight of your life - but please know this - I am right beside you holding your hand and giving you all the strength I can. I will be praying for you and I know you will get thru this one way or another and I am with you the whole way like you have been there for me through everything I have and am going thru -

great big hugs and lots of love


Kaerbaer

It sounds like they really care about getting you better which is a big plus nowadays. I hope they can get you comfy because living with pain can be grueling. You're in my thoughts and prayers.

I am so sorry to hear this. A lot of people will be praying for you or sending positive thoughts your way. Have faith and fight as hard as you can and you will beat it.

I am so sorry I haven't been responding to anything lately - I have been very sick all week - vomitting for hours on end and not keeping anything down at all - I am very exhausted -

the raffles are up to date - but that is it - I haven't even clicked anywhere or done anything

so if I missed something I am very sorry - and I hope you will continue to have patience with me

thanks for everything

Karen

Karen, when I had endiometriosis I didn't tell the Doctor for a couple of years as I was caring for my (adoptive) Father. So every 21 to 24 days (I know it should have been 28 days but it never was for me) I was violently sick. More violently sick than I have ever been before or since. And the only thing I could keep down was peeled grapes. At that time grape juice was very hard to find so I used to peel grapes and then eat them. It might work for you but no promises, everyone has a different body.

Have they increased your dose of Methadone? That could cause the sickness! Hang in there and I still have you on my prayer list!

no the only change in my meds was the addition of the estrogen - and that should not be giving this kind of reaction - or at least it shouldn't be lasting this long

Sometimes I wonder about doctors, I hope you get to feeling better soon! Get you a bucket to keep near you!

I've used this site for about a year now and thought I'd share with everyone here!
Light a candle and hold someone in your thoughts and prayers for a few moments!

http://www.gratefulness.org/candles/candles.cfm?l=eng

Hi
and thanks for caring - I actually have 2 that we switch off as they get full - lol - or too stinky - and one in the bathroom as a just in case - lol

things are just not good right now

ok -


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themom1955
GPF Moderator

thanks for helping

Karen

ok - here is the latest - I have Gout in my big toe - so it is really pretty right now - a nice dark shade of red - about twice its normal size with a hole in the middle. And I have to have an ultrsound as my belly has tripled in size since I started the Meth and they want to see why - and on top of that I have to have a bone density test as they think all the drugs and weight loss and everything else I have been thru may have caused my bones to weaken considerably.

So please help me out as I am really scared and need your support to get thru this - you all have been great so far and I really appreciate all you have done for me over the past years SPAM REMOVED and I also wanted to remind you of the new raffles I posted - the coupons for Legoshop.com - as they would help you to get a great graduation gift for your little ones that love Lego - I really need these raffles to go quickly as if my nephew finds out I have these coupons he will go balistic over them - and he doesn't understand that they can't be used in Canada. So I am trying to get rid of them fast as I really want to stay a good aunt in his eyes. - so thanks for all your help in getting them finished ASAP.

Thanks everyone - I love you all for everything you have done and all the support and given me



All my love Karen

Hang in there kaerbaer!

Karen, of course you are scared, but you have been through worse. Things are going to get better I am sure. But in the meantime things are definitely rough for you. So we are all praying hard for you until you are 100% fit again.

ok - yesterday's tests wore me out and made me very sick again - I know there are raffles that have finished - but I don't feel up to doing them right now - I promise I will get them done asap tho - as soon as I feel better I will get them done

I am exhausted again - so I am going to try and sleep and rest today so that tomorrow I will hopefully be better

thanks for your support and caring




Karen

Karen,

Again, sorry to hear of your troubles. Just do what's best for you. The raffles could wait. Get some rest. Hope you feel better soon.

We will all still be here, take care and get some rest!

Just wanted to add my prayers. Lydia

ok - Another Update - its a goodnews/bad news thing - and won't fid out which side it will stay on til a bit of time has passed - lol

they have taken me off yet another med - my marinol which I was on to help me eat and sleep - it is derived from marijuana - so there is definetely withdrawal with this one - and I am feeling it - but it has been a week- I was supposed to go down to 2 pills a night for a week and then 1 pill a night for a week - but I didn't have enough pills left to do that and the pharmacy refused to fill a prescription with only enough for me to do this - and its an expensive drug - so it was either get a full script and waste the insurance and money and pills or cut down with what I had left and then go cold turkey - so that is what I did - and I am feeling it - I have been on it for 1 and1/2 years - so this is another shock to my system - yippee - but at least it will save me some insurance and money and hopefully the withdrawal won't last too much longer - so far it has been weird - I keep crying over every little thing and am getting very bad migraines and just want to sleep all day-

they told me it would take two weeks to get it out of my system doing it their way - but doing it my way it should still take about two weeks - they will just be a lot rougher.

but as far as I am concerned - getting me off the drugs is a good thing even if I hate the withdrawal period and want to die from the effects - I am hoping they stop sooner rather than later and that makes three drugs off and 2 new ones on - so I average out to down 1 drug but we are hoping that these will be temporary as the meth is going to be replacing the majority of my drugs til I get off most of them and then they can see better what they are dealing with and hopefully will be able to find the problem and fix it - the doctor said h has some ideas and wats to try them on the 8th to see if they work - if they do it will mean starting a new series of treatments aimed at re-training my nerves to know what pain actually is and not say everything is pain like they are now - he is hoping that the damaged nerves will be able to repair themselves with this treatment and that I will eventually be able to walk normally again and to not have pain in my belly or legs at all

so here's hoping it works



thanks for all your support and caring

love you all

Karen

I'm sorry about the withdrawals your having but I hope it's short lived and that you're on the right track to getting better. I live with daily pain but it's nothing in comparison to what you're dealing with. My thoughts and prayers stay with you.

I am so sorry to here that, pain is awful and even if it is not as bad as Karen's it is pain you have to deal with on a daily basis. And the fact Karen has more pain does not mean yours is not bad for you.

Sorry to hear about the withdrawals and pain you are going through.
Keeping you in my prayers.

Awe, you're so sweet and thank you.

I agree with blythburgh - I am going thru hell - but that doesn't mean that others aren't as well - they just might be going thru a different type of it - it doesn't make mine more important - or theirs less it also doesn't mean they need less caring and support - but maybe they have more people to turn to to get it - or more places to go to get help - I don't have anyone or anywhere except you guys - and I really pray that anyone else in a bad situation - either sickness - or pain or a combination of the two - like me - or any other type of problems - has some sort of support system to help them thru it - I don't - as soon as I got sick - all my friends just disappeared - they stopped answering my IM's - wouldn't visit - stopped taking my calls - and absolutely no-one sent me a get well card or anything - I do have a few friends online that have tried to be there for me - most are from tesas - the ones that aren't are from when I owned my own sites. and there is little they can do for me but listen - and that is a great deal - at least to me - but they have problems too - and they won't talk to me about them because they fear I am going thru enough - and I hate just talking about my problems all the time - I need to hear about others - not just their problems but thier joys and accomplishments. - I have a grand total of 6 peple who talk to me on a somewhat regular basis - not including my parents who I live with - and they are going thru enough stress of there own as they are trying to take care of me - are stressed because I cannot contribute to the household in any way and my dad just lost his job - and now all three of us are living off my mom's salarey - which is less then mine was working part-time. My parents try but my dad has never learned how to support or care about a sick person - we have major blowouts because he thinks I am just being lazy - not sick - and my mom is too stressed from tryingg to support us all and trying to keep a house over her heads to be a support to me - and my sister has never cared about me since I was born - she has her reasons I guess - but still she is not there - that just leaves my 10 year old nephew - and I can't - won't put this on him - that would be too cruel - so I need you guys a whole lot - but my point is that others do too - and they shouldn't be afaid to say so - just because your not going thru what I am - doesn't make what you are going thru any less - and it doesn't mean that you aren't cared about by the other members or by me - it breaks my heart to hear someone say that they are suffering - in any way - and if anyone wants to pm me to talk or IM me to chat - just send me a message -I want to be there for you just like everyone else has been there for me - and at least I understand a bit of what you are going thru - I am so lonely and scared - that it would help both of us to talk.

all my love and caring to everyone at TTM



Karen

Hi Karen,

I hope I'm not perhaps sounding a bit repetitious here, but again sorry to hear of your problems.

Glad to hear that you've been finding the forum helpful. And please do continue to hang out with your Tesas' friends in here.

And to let you know that I've been buying the points from you on a monthly basis. And do redeem them for advertising.

ty for that - I appreciate knowing you care - and it never sounds repititious to me - it sounds comforting and reassuring - and I also appreciate you helping me by buying my points as I need all the financial help I can get - and tesas always appreciates its members advertising - it shows you have faith in the site and you trust the members to do their best to help you and support you.

ok - I got some god news from the doc today - I DO NOT have gout - it is arthritis in my big toe - although she cannot explain the big sore with a hole in it or the swelling - she thinks it is a result of being bedridden for so long - and said she is amazed I don't have more of them - I also have a large amount of books ready to go for the raffle - I just have to decide how much to raffle them for. - I have also been getting more activity in lately which is good - painful and exhausting but good - thank god for gravol - I don't know if that is a canadian thing but it is a anti- nausiant - if that is spelt correctly - and I actually got more than 2 hrs sleep last night - I got 4 - which is really good for me - since I have been too sick and in too much pain to get any sleep lately other than a few snatches for about 20 min here and there

my blood acid is extremely low - the lowest my dr has ever seen which apperantly is a very good thing as it means that my kidneys are in great shape now too - they weren't before. so overall there are signs that I may be starting to get better - or at least I am doing something right. - I am also up to 4 mins on the stationary bike - when I started 2 months ago - I couldn't do 30 secs - so that is a good thing too.

I just hope things continue to go in this direction instead of falling back again like usually happens - but hopefully all this good stuff will last



Karen

Hi Karen,

Glad to hear the good news that you don't have gout.

Also, that's good that you have a stationary bike. That's part of the idea, to build it up slowly. Keep up the good work !

Also, I'm wondering do you read books ? If you do, try reading some of those motivational or inspirational or success-oriented books. You might find them uplifting and helpful.